This is why I opted to hold my son when he was passing away. They gave us the choice because they know it's traumatic and there was some question as to whether at that point he was even conscious enough to realise, but as long as there was the chance he was aware I wanted his last moments to be knowing how loved he was.
Shits hard aye? I lost my mum a year ago, pancreatic cancer. I'll never forget her breathing the night we stayed with her in the Hospice. Hope your well.
Find comfort in the lessons they taught you, no matter how small. Be a good person, respect others and yourself, have patience when no one else will, and make your bed in the morning. Those are the things I remember from my mother.
I briefly checked your Reddit profile, and I am too weak to even read through your last post. I cannot comprehend what you went through, nor will I ever be able to. You literally sacrificed your mental and physical health to give your child love in their last moments. There's no way enough respect can be paid to you.
I'm so, so sorry for your loss. I hope you don't mind, but I looked through your profile; Gianpaolo was a such a sweet little baby boy, and I'm sure he was comforted by your presence and knew just how beloved he was.
It's an incredibly difficult situation to find yourself in, knowing that you have to live the rest of your life with that experience.
Though, if you were asked do you want to feel comfort and love for the rest of your life. Then that is exactly what he felt for the rest of his life and you can't put a price on how much value that had in that moment in their life.
I don't think I fear death, but I also don't think I'd want to go through the process alone. I've held onto several family members as they've moved on and as much pain as it brings I feel like it was worth it for them.
Sending you all the love in the world right now.
Like another redditor I checked your profile too and learned about your angel baby. I’m so sorry for your loss.
i saw your post as well, i had sepsis recently and it’s obviously very different but the sepsis alone is just awful. i can’t imagine your pain, i hope you continue with your therapist and tell them everything you’ve said on your posts. i think what you did for your son was very kind and very brave, i can tell you’re a caring person. i think your son had the most loving mother he could have
I can’t imagine a parent ever saying no to that. No matter how traumatic. I try to understand different points of views and how people work differently but I can’t imagine a parent saying no to at the least holding their child’s hand on their last day of life.
Honestly I agree with you, and I think almost everyone does but apparently some don't feel up to it in the NICU, or at least that's what the staff told us. I couldn't have lived with myself any other way, my poor little boy deserved at least that. He passed away lying on my chest.
I also know if my son had a condition he was never expected to survive or live past a certain age, the fact they defied the odds and lived so long would still be a gift.
My uncle recently pass away at close to 90. He was putting on his shoes to go out and help one of his sons do some farm work and did not get back up. Something he did nearly every day. I could not think of a better way to die. Unfortunately, many do not get to live that long. 17 years is not long enough.
I completely understand that "primordial" part refers to dwarfism starting pre-birth, but the name makes it sound like they're some mythical Tolkien creatures, first dwarves that walked alongside Durin I, the Deathless.
I was just gonna say. Not to make fun but primordial sounds like a legendary version of dwarfism.
Reminds me of hemochromatosis, aka Iron Overload. Most metal sounding genetic illness.
I've always thought that Dwarf was the best word for these conditions. "Little person" sounds demeaning to me. Little has a lot of negative connotations. Dwarf is just rad.
Imagine you're patient zero of a new disease and the doctors were like "we can either call you a Wizard, or a stinkman"
Ideally we should ask each person what their preferred term for their condition is and use that, but it's my understanding that most people with these conditions prefer Small Person because of the connotation that Dwarves are a separate species, or 'other' in some way.
I see social media noise along those lines, but every relevant individual I've ever met in person has been really annoyed by the trend and tells me to just say "midget".
Same vibes as that old push to get people to say "African-American" instead of "black".
dwarfism is the correct medical term, but they're a person not a condition so they don't want to be called their condition (also they don't live underground and mine rocks, most of them at least). so they are a little person (with dwarfism), or a person with dwarfism, not a dwarf (unless someone wants to be called a dwarf, that's their purview)
It's always been weird to me because dwarves are mythological creatures and not actually humans, using the same term for a person with a disability seems kinda odd.
Does this make her considered a giant among people with primordial dwarfism? This is a serious question im not trying to be funny or anything I am really curious.
Yeah it would actually, would make her an outlier and maybe even help kids in the future with this drawfism.
Also, maybe some hope for families too. Kinda funny how I feel bad for her, but she's going to contribute more to the planet and science than five of me ever would.
My big question is that 2 liter bottle.. the scale is all off, what is that??
If I understand you correctly, it looks if if you think of her as standing in the floor, but she's actually on a kitchen countertop. Maybe I'm misunderstanding your confusion though.
Echoing what another commenter said - 2 liter bottles come in many shapes internationally. Those UK bottles are more narrow than an American 2 liter bottle
I'd just be comfortable knowing I could potentially, yeah. Why not.. there's a scenario when drinking a 2 liter in a car is appropriate and I'd be ready for it.
I just looked at her Facebook page. Turns out that she died last year.
"It is with great sadness that we as a family have to announce to you all that our beautiful princess, daughter, sister, auntie, niece, granddaughter and great granddaughter charlotte rose garside sadly passed away unexpectedly 4.30pm on the 4th may. She was surrounded by everyone close to her. She fell asleep in my arms and that's one comfort I can take from this. My beautiful princess we love you unconditionally and we will get through these next days weeks months and years together using the strength and drive you have shown us for nearly 17 years. It's not goodbye it's a see you later my beautiful girl we will be together again one day but for now make sure you give your grandad a hug from me and tell him to look after you for me until I get there fly high princess.
We are setting up a go fund me for Charlotte's funeral as we believe this girl deserves the best send off ever and also to help us as a family to get through the next few months. Once we have it set up we will post information for everyone to share.
Also funeral arrangements have yet to be confirmed but we will let you all know."
Imagine your daughter lying in your arm on a random Saturday afternoon and then she dies unexpectedly. Heartbreaking, I can’t imagine the horror that the parent must have felt.
What I expect happened is that she fell ill very suddenly and then her parent (whichever one wrote this) was holding her when she finally died. Even though she "died suddenly", it could have taken up to a day or even a couple of days - you could still call that sudden and unexpected.
Brain aneurysms are quite common for those with primordial dwarfism, so I'm imagining that is likely what happened here, and would have been quite sudden.
(Side note - it could also have happened exactly as you're imagining! And either way, it's still very sad!)
I was watching a show on corrective surgery and one of the women on it had gotten into a serious accident when she was in her twenties (flung off a motor bike and slammed into a wall). She wanted corrective surgery to fix her nose since a lot of the bridge had been removed. After mentioning her nose would leak clear fluid every so often they decided to do a couple scans to be safe. They ended up finding a few mid sized brain aneurysms. God knows how long she’d had them but they pretty much saved her life with their caution. If they had went ahead with the surgery the aneurysms could’ve suddenly ruptured and she’d be gone just like that.
The fact you can live for years perfectly fine without any symptoms only to “suddenly” drop dead is terrifying.
I remember watching a doc about this family when Charlotte was a baby and that family loved that little girl so much, I remember the sisters were so cute with her
Thanks for sharing! Kids Health/Nemours is one of the top places for care for kids with PD and similar conditions. They have docs and staff with PD as well. Creates a great space for kids to come and receive care.
Heartbreaking, I used to get recommended a lot of videos on YouTube about people suffering from various rare diseases, and more often than not, they were small children. The ones that stuck in my memory most were kids with a skin condition I can’t recall the name of, but basically their skin kept peeling off and couldn’t heal. They constantly lived in massive pain, where any movement or touch was unbearable, and you could see it in their faces. They usually didn’t live long, maybe into their teenage years if lucky, but their entire lives were spent in agony, looking like burn victims who never stopped burning. Horrific. I wish there was more global investment and cooperation in understanding human biology and making a united effort to cure all diseases.
Neglected diseases! Usually because there just isn’t any money in it (either because there’s so few people who have it or the areas where it is common are extremely poor)
Also called Orphan or Rare diseases. When Uber rich folks have a child with a rare disorder there is often an influx of funds for research, direct aid to families and a broader availability of easy to access resources on the internet.
There's actually a very new treatment available! It's a gene therapy in a topical gel . It's not a complete cure, but it's as close to a cure as one could get. Just think about how insane that is.
It's a gel that contains a modified herpes virus that carries the missing gene that makes the 'glue' (collagen) to hold the skin layers together.
It's applied on existing wounds in a dot grid and covered in plastic wrap. It actually allows them to heal like normal skin does. The worst wounds are treated first because there's a limit to how much can be used at once.
It obviously greatly enhances quality of life, and yes, it's too expensive for most sufferers to get.
I could tell from the bottle that she was tiny, i feel so so bad for her :( She passed last year, she mustve had a very difficult life. At least im happy that her family loved her unconditionally until the end
Some of these comments… seriously, this is a person. My daughter was stillborn last year due to a rare version of primordial dwarfism that caused her body to have severe non-survivable issues before she was even born. We didn’t know there were issues until late into the pregnancy. I don’t find primordial dwarfism rad or fun like hobbits after having to bury my daughter.
This poor girl apparently passed away. Her life would have been tough. Her family have lost a child and knew the whole time that she likely would die before them.
Losing a child regardless of their condition is the most devastating thing. Dwarfism etc isn’t some funny or cool disability. Particularly this type.
Take a moment and have some compassion before positing comments. If your comments were innocent, I hope this post provides some more education and offers some reflection
I’m struggling to come up with the right response to your wonderful comment, sugarorangecats. Thank you for not only sharing your very personal story, but reminding everyone of the weight of reality. Every word you posted was perfect. All the love, support, strength…everything…I wish it for you. Thank you.
she sadly passed away last year, almost 17 years old rest in peace, Charlotte
Ah man that's sad I was about to ask how old she was when she hit the 4 foot marker
Her family’s FB said she passed away in her sleep in her mom’s arms. Mom’s trauma aside, I can’t think of a more peaceful way to go. RIP.
This is why I opted to hold my son when he was passing away. They gave us the choice because they know it's traumatic and there was some question as to whether at that point he was even conscious enough to realise, but as long as there was the chance he was aware I wanted his last moments to be knowing how loved he was.
As a boy who was there when his mother passed, I feel this.
Shits hard aye? I lost my mum a year ago, pancreatic cancer. I'll never forget her breathing the night we stayed with her in the Hospice. Hope your well.
All good now. Was about 25 years ago, crazy to think how time flies. I hope you are well too.
Thanks. Yeah, it never feels far away. I know I'm only a year out but, surreal at times not having parents.
Find comfort in the lessons they taught you, no matter how small. Be a good person, respect others and yourself, have patience when no one else will, and make your bed in the morning. Those are the things I remember from my mother.
God the death rattle. I can still hear it. I'm sorry about your mom
Thanks, yeah, never knew why they called it that. Its...apt.
It really is. I also had to hear my mom go through it. It really sticks with you
I briefly checked your Reddit profile, and I am too weak to even read through your last post. I cannot comprehend what you went through, nor will I ever be able to. You literally sacrificed your mental and physical health to give your child love in their last moments. There's no way enough respect can be paid to you.
It's one of those things that we don't know what we can do until we find ourselves forced to do it.
That’s so beautiful and strong, mama.
I'm so, so sorry for your loss. I hope you don't mind, but I looked through your profile; Gianpaolo was a such a sweet little baby boy, and I'm sure he was comforted by your presence and knew just how beloved he was.
I am so deeply sorry for your loss.
So sorry for you loss.
It's an incredibly difficult situation to find yourself in, knowing that you have to live the rest of your life with that experience.
Though, if you were asked do you want to feel comfort and love for the rest of your life. Then that is exactly what he felt for the rest of his life and you can't put a price on how much value that had in that moment in their life.
I don't think I fear death, but I also don't think I'd want to go through the process alone. I've held onto several family members as they've moved on and as much pain as it brings I feel like it was worth it for them.
I am so sorry for your loss 💙
Sending you all the love in the world right now. Like another redditor I checked your profile too and learned about your angel baby. I’m so sorry for your loss.
i saw your post as well, i had sepsis recently and it’s obviously very different but the sepsis alone is just awful. i can’t imagine your pain, i hope you continue with your therapist and tell them everything you’ve said on your posts. i think what you did for your son was very kind and very brave, i can tell you’re a caring person. i think your son had the most loving mother he could have
I can’t imagine a parent ever saying no to that. No matter how traumatic. I try to understand different points of views and how people work differently but I can’t imagine a parent saying no to at the least holding their child’s hand on their last day of life.
Honestly I agree with you, and I think almost everyone does but apparently some don't feel up to it in the NICU, or at least that's what the staff told us. I couldn't have lived with myself any other way, my poor little boy deserved at least that. He passed away lying on my chest.
Stuff like this makes me want to delete Reddit.
As a father, I feel this, hard.
I also know if my son had a condition he was never expected to survive or live past a certain age, the fact they defied the odds and lived so long would still be a gift.
Bright candles burn fastest.
Ignorance is bliss
My uncle recently pass away at close to 90. He was putting on his shoes to go out and help one of his sons do some farm work and did not get back up. Something he did nearly every day. I could not think of a better way to die. Unfortunately, many do not get to live that long. 17 years is not long enough.
Here I was thinking I would get to learn something new about her but not like this
Ah man. Rest in peace
100% OP is a bot then because wtf
Now I'm sad
So sad.. first two feet, then four feet, and now six feet.
https://preview.redd.it/unourif9kl6g1.jpeg?width=4320&format=pjpg&auto=webp&s=f265e4c47406e80e0a9a756e4c0ca5007d393d7a
https://preview.redd.it/vk9o6slitn6g1.png?width=720&format=png&auto=webp&s=9adf8e47ebe712e390ed4925982e7e00dcd45c5d
This joke is killing me. Ahahahahah I shouldn't be laughing but I am!
A good joke is a good joke, regardless of the taste. I can oof and laugh at the same time
[deleted]
Rest in peace
Seeing the post then this comment
I completely understand that "primordial" part refers to dwarfism starting pre-birth, but the name makes it sound like they're some mythical Tolkien creatures, first dwarves that walked alongside Durin I, the Deathless.
Primordial is such a badass adjective that I almost forgot she's got a debilitating illness
My cat has a primordial pouch. She IS badass!
This is literally the only reason I know the word Primordial, so I can say it when I wiggle my fat cat's pouch
I say it when I wiggle my belly.
I've got a primordial disposition to opiate abuse :D
Mine does too and it wiggles back and forth when she runs. It's adorable.
I was just gonna say. Not to make fun but primordial sounds like a legendary version of dwarfism. Reminds me of hemochromatosis, aka Iron Overload. Most metal sounding genetic illness.
Iron Overload sounds like an awesome name for a heavy metal band/album.
Iron Overlord
Bronze diabetes. Because you can turn bronze. Known about in ancient times, treated with leeches.
Still today treated with bloodletting (or donating blood).
"I told you guys I was too fucking metal."
"Primordial Dwarf" sounds like a Dark Souls Boss
https://preview.redd.it/spxqktuqtk6g1.png?width=720&format=png&auto=webp&s=d0772f85d891aed8701e3e79d5ea640c354789a1
I laughed at this too hard
Feels like a really specific star classification to me.
I've always thought that Dwarf was the best word for these conditions. "Little person" sounds demeaning to me. Little has a lot of negative connotations. Dwarf is just rad.
Imagine you're patient zero of a new disease and the doctors were like "we can either call you a Wizard, or a stinkman"
Ideally we should ask each person what their preferred term for their condition is and use that, but it's my understanding that most people with these conditions prefer Small Person because of the connotation that Dwarves are a separate species, or 'other' in some way.
I'd rather be a hobbit, since everyone would assume I'm just laid back and prefer to be warm and have a nice breakfast rather than get in fights.
And they'd be right.
Plus the bonus of no longer having to shave your feet, right?
That's what faux sheer fleece-lined tights are for. :)
Licence to carry a war axe though.
I see social media noise along those lines, but every relevant individual I've ever met in person has been really annoyed by the trend and tells me to just say "midget".
Same vibes as that old push to get people to say "African-American" instead of "black".
"Dwarf" is generally seen as dehumanizing. "Little person" is preferred in large part because it reinforces humanity.
I think it's "little" rather than "small" or "short" that gets me? It feels overly cute to me. "Little" is a word I'd place before "kitty cat."
(obviously this has nothing to do with me and I'll use the word folks want me to use)
Yeah, I feel like "small person" or even "short person" sound way better but it's not me deciding these things anyways
dwarfism is the correct medical term, but they're a person not a condition so they don't want to be called their condition (also they don't live underground and mine rocks, most of them at least). so they are a little person (with dwarfism), or a person with dwarfism, not a dwarf (unless someone wants to be called a dwarf, that's their purview)
It's always been weird to me because dwarves are mythological creatures and not actually humans, using the same term for a person with a disability seems kinda odd.
Not to be confused with dire-dwarves, fel-dwarves or nether-dwarves
Anyone shorter then 180cm in the Netherlands?
Oh is that what it means??? I thought it was some unique genetic trait that first showed up in early humans and was subsequently lost till now
I thought of Kratos' Chaos Blades when i first read the word
Could you imagine if the earliest humans were like this crawling out of a soup
Prometheus shit
Also sounds like they were feasting with Cronus and Rhea
Haha that was my thought too - before the age of man, before electricity, cities or trees… there was dwarfism
Does this make her considered a giant among people with primordial dwarfism? This is a serious question im not trying to be funny or anything I am really curious.
Yeah it would actually, would make her an outlier and maybe even help kids in the future with this drawfism.
Also, maybe some hope for families too. Kinda funny how I feel bad for her, but she's going to contribute more to the planet and science than five of me ever would.
My big question is that 2 liter bottle.. the scale is all off, what is that??
European bottles are skinnier and taller than American bottles.
They also have healthcare and bicycles
Just like the people….
Looks like there is a time gap between the two photos and she was shorter in the first photo.
No shit really??
Looks like she is on a counter by a sink, check the cupboard by her head….looks like a laundry room at first but the mug gives it away.
Wtf do you think they were asking then lol
the soda bottle itself is different than the ones theyre used to seeing
If I understand you correctly, it looks if if you think of her as standing in the floor, but she's actually on a kitchen countertop. Maybe I'm misunderstanding your confusion though.
I can't tell if that's a 16oz bottle, 2 liter or one of the 3 liter ones that are narrow. They needed another common item for scale here.
She's from the UK, and that's a regular-shaped 2 litre bottle of supermarket-brand fizzy orange drink or something similar
Like the other commenter said, it looks like she's stood on a kitchen counter rather than the floor
Only after I read these comments I noticed that it is the kitchen counter. Look at the fingers on the right.
Plus the corner of the kitchen sink in the bottom-left, and what seems to be a utensils jar behind her
Echoing what another commenter said - 2 liter bottles come in many shapes internationally. Those UK bottles are more narrow than an American 2 liter bottle
Yeah it's cool does that fit in a cars cup holder thing or still too wide?
Usually too wide still. Why you would want to be lifting and drinking 2l of liquid whilst driving is my question
Cause soda is fuckin rad. I usually do cans and they spill.. easier though no top
I don't think I could lift a full 2l bottle to my mouth one-handed, you want to drink it while DRIVING?!
I'd just be comfortable knowing I could potentially, yeah. Why not.. there's a scenario when drinking a 2 liter in a car is appropriate and I'd be ready for it.
Like a banana
I mean, she died last year.
I just looked at her Facebook page. Turns out that she died last year.
"It is with great sadness that we as a family have to announce to you all that our beautiful princess, daughter, sister, auntie, niece, granddaughter and great granddaughter charlotte rose garside sadly passed away unexpectedly 4.30pm on the 4th may. She was surrounded by everyone close to her. She fell asleep in my arms and that's one comfort I can take from this. My beautiful princess we love you unconditionally and we will get through these next days weeks months and years together using the strength and drive you have shown us for nearly 17 years. It's not goodbye it's a see you later my beautiful girl we will be together again one day but for now make sure you give your grandad a hug from me and tell him to look after you for me until I get there fly high princess.
We are setting up a go fund me for Charlotte's funeral as we believe this girl deserves the best send off ever and also to help us as a family to get through the next few months. Once we have it set up we will post information for everyone to share.
Also funeral arrangements have yet to be confirmed but we will let you all know."
Imagine your daughter lying in your arm on a random Saturday afternoon and then she dies unexpectedly. Heartbreaking, I can’t imagine the horror that the parent must have felt.
What I expect happened is that she fell ill very suddenly and then her parent (whichever one wrote this) was holding her when she finally died. Even though she "died suddenly", it could have taken up to a day or even a couple of days - you could still call that sudden and unexpected.
Brain aneurysms are quite common for those with primordial dwarfism, so I'm imagining that is likely what happened here, and would have been quite sudden.
(Side note - it could also have happened exactly as you're imagining! And either way, it's still very sad!)
I was watching a show on corrective surgery and one of the women on it had gotten into a serious accident when she was in her twenties (flung off a motor bike and slammed into a wall). She wanted corrective surgery to fix her nose since a lot of the bridge had been removed. After mentioning her nose would leak clear fluid every so often they decided to do a couple scans to be safe. They ended up finding a few mid sized brain aneurysms. God knows how long she’d had them but they pretty much saved her life with their caution. If they had went ahead with the surgery the aneurysms could’ve suddenly ruptured and she’d be gone just like that.
The fact you can live for years perfectly fine without any symptoms only to “suddenly” drop dead is terrifying.
Happened to someone I know. Really sad. He seemed physically healthy and everything which is pretty scary to think about...
I really want a brain scan. Just because.
It's so sad.
Living a good life with a child burdened with a rare medical disorder can so very hard.
When you have the gift of time, positive medical treatment, you live life well.
Our son had Hurler syndrome and he was a little person.
The older name for Hurler was gargoylism.
And by the time he passed on he had distinct gargolism type features.
Especially his face.
I remember one time an older lady was so distraught to see our son in a wheel chair on oxygen.
By that point I was in the stage of life where I did not want to talk with strangers about his health and terminally ill status.
She asked what was wrong with him.
I told he had a bad cold.
Our son died in my arms as I snuggled with him in hospital bed which was set up in the lounge area of our cottage.
You never are truly ready when the last breath happens.
[deleted]
Read it twice and somehow glazed over it twice. Thanks.
I remember watching a doc about this family when Charlotte was a baby and that family loved that little girl so much, I remember the sisters were so cute with her
Yeah I saw that documentary a long time ago. It was very moving.
Unfortunately, she passed away last year in her late teens.
If you want to learn more about her condition, Primordial Dwarfism, or PD, is an umbrella term that encompasses a few different genetic disorders.
This study is an overview of the different conditions and their causes.
If you aren't into medical jargon like me, Kids Health has a fantastic parent's guide in plain language that's easy to understand.
Thanks for sharing! Kids Health/Nemours is one of the top places for care for kids with PD and similar conditions. They have docs and staff with PD as well. Creates a great space for kids to come and receive care.
I remember watching her TLC specials wayyy back in the day. So sad to hear she passed <3
That and the conjoined twins….
Which ones?
Heartbreaking, I used to get recommended a lot of videos on YouTube about people suffering from various rare diseases, and more often than not, they were small children. The ones that stuck in my memory most were kids with a skin condition I can’t recall the name of, but basically their skin kept peeling off and couldn’t heal. They constantly lived in massive pain, where any movement or touch was unbearable, and you could see it in their faces. They usually didn’t live long, maybe into their teenage years if lucky, but their entire lives were spent in agony, looking like burn victims who never stopped burning. Horrific. I wish there was more global investment and cooperation in understanding human biology and making a united effort to cure all diseases.
Neglected diseases! Usually because there just isn’t any money in it (either because there’s so few people who have it or the areas where it is common are extremely poor)
Also called Orphan or Rare diseases. When Uber rich folks have a child with a rare disorder there is often an influx of funds for research, direct aid to families and a broader availability of easy to access resources on the internet.
epidermolysis bullosa
Thanks. Yes, this 😭 feels like living in hell with a disease like this.
There's actually a very new treatment available! It's a gene therapy in a topical gel . It's not a complete cure, but it's as close to a cure as one could get. Just think about how insane that is.
It's a gel that contains a modified herpes virus that carries the missing gene that makes the 'glue' (collagen) to hold the skin layers together.
It's applied on existing wounds in a dot grid and covered in plastic wrap. It actually allows them to heal like normal skin does. The worst wounds are treated first because there's a limit to how much can be used at once.
It obviously greatly enhances quality of life, and yes, it's too expensive for most sufferers to get.
This post title is a bit odd, seeing as she’s no longer alive.
OP is probably a karma farming bot copying older posts.
She passed away on May 6th 2024
Charlotte Garside died in 2024
Here's a better perspective on how tiny she is
https://preview.redd.it/zi0eg4x68n6g1.jpeg?width=1080&format=pjpg&auto=webp&s=98cb39a12a3bf7f73cab97df90a30b87f46a4c2c
I could tell from the bottle that she was tiny, i feel so so bad for her :( She passed last year, she mustve had a very difficult life. At least im happy that her family loved her unconditionally until the end
How awful I didn't know she passed. :( I'm also glad she seemed to be surrounded by love and family ❤️
Reach for the stars kid
I have a feeling she will reach them soon.
She died last year.
Let’s take a moment to be grateful for the health we have. To be able to see this post. I hope she was surrounded by love in those years. Rest easy
“Primordial? Really?”
Goes and checks the interwebs.
Primordial dwarfism (PD) is a form of dwarfism that results in a smaller body size in all stages of life beginning from before birth.
“Well okay then!”
Some of these comments… seriously, this is a person. My daughter was stillborn last year due to a rare version of primordial dwarfism that caused her body to have severe non-survivable issues before she was even born. We didn’t know there were issues until late into the pregnancy. I don’t find primordial dwarfism rad or fun like hobbits after having to bury my daughter.
This poor girl apparently passed away. Her life would have been tough. Her family have lost a child and knew the whole time that she likely would die before them.
Losing a child regardless of their condition is the most devastating thing. Dwarfism etc isn’t some funny or cool disability. Particularly this type.
Take a moment and have some compassion before positing comments. If your comments were innocent, I hope this post provides some more education and offers some reflection
I’m struggling to come up with the right response to your wonderful comment, sugarorangecats. Thank you for not only sharing your very personal story, but reminding everyone of the weight of reality. Every word you posted was perfect. All the love, support, strength…everything…I wish it for you. Thank you.
Thank you for your kind words, I really appreciate it. I rarely post but this was too close to home not to comment
💔 rest in peace, Charlotte and payers for her family
She passed away last year. Obvious bot post.
Wym? She still has 2 feet
Not anymore
I feel so sorry for her. Life must be so hard with her disability. Nobody wants to be a ginger.
She's dead
Dammit, Jim!
How tall was she when she died?
4 feet tall ig idk
[deleted]
1,22m
https://i.redd.it/4ihvyosssk6g1.gif
Her increase in height was mainly attributed to her neck.
So she can ride roller coasters now, right?
She's dead
...so that's a no?
It was a yes or no question
No.......cos she's dead.
Theme park rules don’t mention that a deceased person may not ride. She’s good. I know a lawyer.
The title did not make that clear. It said that she “is now 4feet tall”, not that she “was four feet tall when she died”.
So now she's 4' long?
I hate how hard this made me laugh
Comedy = tragedy + time
But i guess in this case its the sudden tonal shift from an amused Jolly question to a flat, unnecorated statement of tragedy
That right picture has her looking like the xeno-human hybrid from Alien Romulus.
what does this contribute to the conversation?
Will she die young?
Died last year at 17 judging from the comments
Thanks for reading the comments haha I did not!
shrink her back
Looks like she still only has 2 feet to me...
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Come on, man. Have a heart. She's a dead disabled teenager.
she really heard 2 feet tall and decided no, screw that, double. hope it wasnt painful, its certainly the leap in height!