I'm really curious on everyone's thoughts on helping family members with schizophrenia, especially after this feedback I received

I was putting scenarios into ChatGPT to see what it would advise about living with someone with schizophrenia. I know ChatGPT is not the be-all-end-all for advice and can hallucinate, but it works by collecting all the most common professional advice and providing a consensus, so I like to use it to gain perspective on things in my life.

ChatGPT claimed that you should help a schizophrenic family member *up until* the point that it (1) harms your job/career, (2) causes you to be depressed or develop anxiety, and/or (3) causes you to absorb mental/verbal abuse indefinitely. ChatGPT said putting up with any of those would be "unreasonable sacrifice."

This was kind of shocking to me because, as I'm sure most of us would agree, these are basically unavoidable aspects of living with someone with schizophrenia. It seems like it's impossible to not have negative effects on your mental health or finances from dealing with a schizophrenic partner, child, or parent, unless they are medicated and stable

This got me thinking...how much are you supposed to actually deal with or put up with when it comes to a schizophrenic family member? Is the professional recommendation really to just not put up with them most of the time? Where is the line anyone here draws?

Really curious what everyone here thinks on this

  • “these are basically unavoidable aspects of living with someone with schizophrenia” and “it's impossible to not have negative effects…from dealing with a schizophrenic partner, child, or parent, unless they are medicated and stable” really hit home.

    I’m having a rough patch with my kid who is just old enough to be out on their own but isn’t at all capable of doing so. They’re also causing the rest of the household issues by being in the house. They’d also like to go off their medication.

    I want to say that they need to follow the rules of the house or leave. Even medicated, they’re not doing very well at this, so I can just imagine what going off meds will do. I don’t want to kick them out in the middle of winter when I know I’m basically sending them into homelessness.

    So my answer is that as parents (and I assume partners and children too) we’re clearly taking on negative effects and so are the siblings who live in the home or watch us parent from the outside. What’s the alternative here? We ask for resources and help but get platitudes and pushed aside because we’re “handling everything so well” not because we want to but because we have no other options.

    Only once we hit rock bottom and can’t take any more (or we get physical harmed) does anyone pay attention…and then they judge or ask why we didn’t ask for help sooner.

    I think about your last paragraph every time I learn of a tragedy and wonder how long and hard the family fought to get their loved one help before tragedy struck, which is basically what the laws in essence require at this point, and then it’s too late.

    Every time you get harmed I hope you called the police and had your son taken in for an eval. It's important to push through the hospital intake system into the psych hospital where he can be helped.

    I know it's hard to call the police like this, but you have to remain clinical and use the call to get your son the psych eval. Also create and document the record. Keep copies of everything.

    My heart goes out to you and yours. 💖🫂💖

    Yeah the advice for dealing with this is terrible and always shows that people have no understanding of what it's like. It always bothers me seeing people online say "Oh you need to get them treatment" or "Why didn't you get them help?" as if it is that easy.

  • I draw the line at physical safety. I no longer welcome unsafe people into my home (regardless of relation). Supportive housing is a good option if possible. It is heart breaking to watch a loved one struggling with the illness and watching how it breaks those in proximity. I wouldn't wish this on my worst enemy.

    Sending empathy and light

    That is a sensible boundary, and it is absolutely heartbreaking. Sending you love and light too

  • Honestly, that can be very dependent on the relationship with the person.

    I am the daughter, ex-wife, and mother (amongst other less close relationships) to people with schizophrenia. It’s worth saying that I didn’t actually recognize what it was until my son was diagnosed. So maybe I would have approached those other relationships differently had I had the understanding at the time.

    But I still would not have done as much for any of them as I have done for my son. I would literally deplete myself physically and emotionally if I knew that it meant that he would be better. It was pretty much a full-time job at one point. I guess you could say luckily I’m on disability so I was able to do that. But it still cost me a lot healthwise.

  • My child was diagnosed with very early onset childhood schizophrenia when she was 8. (Yes, she won the genetic lottery and is 1 in 40,000. Yes, she was checked for PANDAS many times. Yes, she definitely still has it.)

    Anyway, many of us are in ever evolving situations where we will always be helping, supporting, and loving the person no matter what comes. However, I have clearly stated to my older daughter that she is NOT responsible and will never be expected to take on the responsibilities of taking care of her sister. My husband and I are doing everything we can to make sure she will be taken care of when we pass.

  • Personal opinion in every way just as a disclaimer: I think just like everything else with this horrible disorder it’s person to person based. I don’t agree with chat gpt on a few different levels and I’ll explain them. First and foremost if we as the “families” are going to be a genuine support system we ourselves NEED to be in our own therapy. Depression and anxiety can be caused by absolutely anything, it is not something specifically special only we experience from being caregivers for these individuals, and family can cause both of those things and have absolutely nothing to do with a schizophrenia diagnosis. Insinuating that because of the way they are they are causing us to be anxious/depressed is just going to reinforce the idea that they are indeed a burden to us, and that’s absolutely unfair to them. If we aren’t taking care of ourselves properly, how can we even begin to be a proper support system for them? It is absolutely okay if you as a human cannot provide that kind of support, but it’s important to find someone who can provide that for them, and setting boundaries that are firm. Second, if your family member has cancer, or is paralyzed, and something happens (maybe once in a while, or maybe frequently) more than likely your job would be understanding that you need to take care of that they’re family, and it shouldn’t be any different for this. It’s a lot of communication, and finding the right job that can accommodate this need. Third, no human should be enduring relentless mental/verbal abuse indefinitely? That seems like a no brainer, and that’s where the boundaries come into play again. Having a full system of therapist, general practitioner, social worker, and anything else that might be pertinent too the specific situation. We make the choice every day to care for these individuals with this horrid disorder, and speaking for myself I wouldn’t want to go through what they do ever. It sounds terrifying, isolating, and it is such a grossly stigmatizing disorder that it’s understandable why so many feel utterly defeated when receiving that diagnosis. I am by no means saying to be perfect as a caregiver, and some days are really really hard, but I just try to remember how much harder their day probably is going. Sorry if this feel like a rant, but I feel very deeply that these people deserve dignity, respect, and to be seen as humans (not to suggest or imply anyone thinks differently in this subreddit)

    [deleted]

    Absolutely. It comes back to boundaries for me, and if those get pushed too far, or even too often then it’s absolutely okay to cut that person out of your life! I think that’s a given regardless of the situation. Can we be more patient, and understanding towards our loved one than what is usually required for people without this disorder? Absolutely we can! Should we tolerate abuse from any human? Absolutely not! Therapy is so great teaching and helping navigate having a great personal life, while being a support system for that person. It scales, and not everyone is needed in the same way, and that’s also fair to take into consideration :) I would never suggest somebody be the subject of abuse ever no one deserves to be a punching bag whether literal or metaphorical.

  • The struggles we all face are staggering. As an aside, I advise not having chats with AI about how to deal with serious mental illness or another person's delusions or behavior. It's fine for compiling reports on certain drugs and treatment results across positive and negative symptoms. Researching and presenting the published literature and studies related to SMI or a particular recommended treatment plan a particular diagnosis or drug efficacy. Research again. It's great at that and my advice is to keep it in that lane. Research and reporting.

    For me it comes down to seeing that what the sick individual needs is treatment I try to remain clinical and focus on getting treatment. It is hard to be clinical when it's family. In my case my young son. But his illness forced us time and again to call the police over his violence. Punching holes in the walls, threatening. And the police and ambulance were always kind. He calmed each time police arrived. First few times hospital sent him home. His psychiatrist said he needed hospital. Next time, and it wasn't long, when the police and ambulance took him to hospital I made it clear his psychiatrist has said he needs hospital, everyone we came in contact with we repeated he is in psychosis and requires hospitalization. Many, many more incidents and hospitalizations my son is home and med compliant and the most gentle soul you'd want to meet.

    It's a hard road. It's a hard, steep and even crowded it is a lonely road, but treatment and help are there at the end of the road.

    The safety of the home and all it's occupants is paramount and must be uncompromising. The home is a safe place, especially for those suffering SMI and the full range of stuff us mortals suffer. It's important, I think we all feel, that it must be made clear that shouting and throwing and acting out is not allowed in the home. Period. Your shouting & antics will bring the police here: we'll have no shouting and such here, say what you have to say in a normal voice.

    I hope everyone that needs help but can't see it, everyone in psychosis has at least one person in their corner with them .... advocating for them and finding the path to treatment. Sometimes it goes through the local Court system. Depends where you live

    Outright abuse and violence seems like a pretty clear and sensible boundary for everyone. However, I feel like most people will suffer a lot of life detriments up until that point regardless.

    Glad that your son is med compliant and doing better now

  • Not too sure about the implication that schizophrenia "inevitably" leads to abuse, mental illness and/or professional harm. I get this might not be the best group to tell this to, but no mental condition makes anyone an abuser and to claim otherwise might contribute to stigma. Plenty of us live semi fulfilling lives without destroying our families, but I digress. This kind of post is why I'm hesitant to get help/support, and I'd go as far as to say thay this kind of post is why so many people (me included, for years) will reject the label despite the evidence. Nobody WANTS this thing, especially when the stigma is so high to this day, and apparently even by family members. Then who can we even go to for help?

    I'm not trying to stigmatize it, but it's just the reality for many of us with undiagnosed/unmedicated family members. Same as I'm sure a lot of people caring for others with dementia. If someone is delusional and thinks you are part of a cult, or are trying to kill them, or molested them, or whatever, then they will probably make a lot of hurtful, false accusations about you. It's not because the person suffering is bad or abusive by nature, but it's just an unfortunate reality of the situation

  • I made the most progress with my schizophrenic son by putting up strong boundaries and enforcing them. If he started in on the verbal abuse I put him on a 48 hour "timeout" where his phone calls/messages weren't answered. Amazingly they develop a semblance of control when you don't respond to everything as if it is some emergency.

    I've experienced the same thing. I had to deliberately withhold help from them to get them to actually do some things that they were refusing to do.

    I find these to last two comments to be so instructive. I often extoll the virtues and necessities of boundaries and often (recently) get chided by folks saying I have no idea what I'm talking about and "that will never work" or "just shows you don't understand trauma."

    But time and again I see comments like the two preceding this where progress was made ONLY because a boundary was established and enforced.

    It's almost as if some families just decide to accept a level of acting out/abuse from their loved ones with mental illness: like they're sick so we just have to let them yell or break things. I don't accept that and always tell folks that psychiatric hospitals have rules and boundaries that are enforced too.

    Anyway, it's good to see that you got the behavior you needed by setting a boundary/rule.

  • My mom’s therapist told me basically the same advice chat GPT gave to you.

    I cut her off for 2 years but then she ended up being horrifically financially exploited during that time so now I’m back and recently became her legal guardian

    Yeah there seems to be a huge disconnect between the people giving advice and the reality of the situation. Don't help them or sacrifice yourself, but then if you follow that advice, people are shocked when they end up homeless or being taken advantage of and wonder why they're not being helped