I haven't for a few years. I'd like to feel good about having one social drink some day.

Personally, I can't due to being on more than one medication where I need to avoid alcohol. Also, some of my other chronic illnesses make it kind of a nightmare to digest the alcohol.

I have to take a low dose of a central nervous system depressant, so the neurological effects kind don't mesh well with booze. At least the way it effects me. If the medication label tells me to avoid alcohol, I've had enough years of practice not to. Haven't really struggled with physical dependency, so if folks do, that obviously requires a lot more support.

This isn't to say that I think it's the way to go about managing FND. I hope you can find a way to tolerate alcohol.

I could drink alcohol before taking as much medication as I do now. But I eventually chose not to. There is no safe amount of alcohol, it is a poisson. I drank my daily glass of wine (or two) and it gave me erosive gastropathy, which then tanked my B12 level, hard. My liver levels in my blood were fine but on ultrasound they saw very slight fattening of the liver. That and that the WHO came out saying that actually, there is no safe amount of alcohol, put me off it completely. A year on, with the medication I started to have to take it would be a very bad idea to drink.

Everyone chooses their own risk of course. If people choose to drink; that's up to them.

i cant even drink enough to get drunk without ruminating the alcohol back up. the feeling of drunkness feels too much like an episode for me to fully enjoy it without being paranoid the whole time

It helps mine! I drink and my legs work better. Alcohol and adrenaline

I get the hangover while still drinking, and I get it from even one drink now.

But my wobbly walking and some of my aches go away when I'm tipsy.

But it takes me two days to recover from drinking as it makes my chronic fatigue flare up massively.

I do get symptoms but you only live once and when you've drunk enough you don't care as much. I have gotten drunk like 4-5 times in the past half a year of being mild to moderately sick and as long as you make sure not to crash, you should be fine. It feels weird tho and I doubt you will enjoy it as much as pre FND

Nah I tried some wine during the first few months I got sick and it came straight back up. I used to be able to drink a glass or 2 with no problems. No idea why though.

I don't care at all honestly. I never really enjoyed alcohol and I have medical cannabis to feel better.

I stopped drinking the second I got sick. Personally I feel like keeping the diet clean as possible is best to help with my symptoms. but each to their own.

It depends on what sort of alcohol I’m drinking. If it’s red wine then it helps my symptoms but if I have sparkling wine or beer I feel terrible

I am guaranteed to get my symptoms when I drink, even just one!

I can’t tolerate it at all since I developed FND. It makes me absolutely wired and unable to sleep.

Never had a problem with it, sometimes improves my symptoms maybe because it relieves stress.

It's never been a problem before getting diagnosed or since

Pre FND I drank moderately, post FND I don’t drink plus being on LDN it works against that. I was a cannabis user pre FND post FND I can’t stand the smell. I have recently started vaping delta 8 and it has helped me with my FND symptoms, without the smell.

Ehhh I stopped drinking for a year, had a glass of wine on Christmas and I’m still recovering. Just not worth it imo, all this time sober I’ve done so much work in therapy that I legit have more fun being sober so it’s a win win, especially for my liver lmao

No. I’ve completely gone off alcohol. I rarely have it and usually only special occasions.

Funnily enough I stopped drinking a few years ago because it really affected my mental health. But not that I remember before that.

I can’t have more than 2 pints of larger before going into a big seizure episode. These days I don’t drink and stick to nonalcoholic drinks if I want something like that or just have 1 alcoholic beverage so I don’t seize

I just drink and say fuck it then take more than i used to to recover but whatever

I'm awaiting allergy testing for potential histamine intolerance/MCAS since starting a low histamine protocol and most of my fnd symptoms disappearing/severely reducing and alcohol is high histamine. I have generally just avoided wine and beer but the odd one is usually fine. Hard liquor seems to be ok so long as it's not too sweet and in moderation (I can't overdue any high histamine food). 

I will drink a glass of wine or two from time to time, usually as part of a celebration (Thanksgiving, Christmas, birthday parties, New Years). But for most of those events I figure I'm going to crash no matter what.

For instance, over Thanksgiving I had a couple glasses of wine. But the event I was at had 40 people (my entire family: parents, siblings, grandkids, and great-grandkids). There is no way I would be able to tolerate that without going into seizure mode. I lasted 2 hours, which was just enough to make it thru dinner and say hi to everyone. I did have a room to retreat to tho, so that was nice.

There is also a wine and book store near me. I will have a glass of hard cider. I haven't had any issues with it.

But I have not had any hard alcohol, mixed drinks, or beer in years now. And two glasses has been my limit.

I can tolerate alcohol better than sugar. Eating sweets over the holiday is why I'm having a major flare-up

I used it as a coping mechanism, then didn’t drink for a decade but it definitely flared my symptoms the following day. I’m much more moderate now, just a whiskey, maybe two or three, if I don’t want to suffer